Falconer - I am not familiar with Samuel's situation but here are 2 suggestions:
Contact Denver Childrens Hosptal ParentSmart Advice - 303-861-0123 (main number - 303-861-8888)
If you would like, send me a private message and I will give you the name and number of our pediatrician. He is great and I suspect his office would be willing to give you some advice or refer you to someone who could help.
Good Luck - Our thoughts are with you.